Kat’s Musings

Tag: Long distance relationship

  • Defying Disability: My Daily Act of Rebellion

    Defying Disability: My Daily Act of Rebellion

    Every single morning, I whisper sleepy sweet nothings to my man. After that, I rise with fire in my veins. I spend the entire day fighting against the disability that constantly tries to drag me down.

    I push this stubborn, trembling body to its absolute breaking point. I lean hard against the bathroom counter while brushing my teeth. My legs shake as I take selfies for him in the mirror. I refuse to let weakness win. In the kitchen, I grip the edge of the counter. I make my espresso with gritted teeth. My knees threaten to snap back beneath me. I refuse to constantly sit in a wheelchair. I refuse to strap on those ugly, soul-crushing leg braces that would mark me as conquered.(Only HE is allowed to do that!).

    A physical therapist once looked me dead in the eye. She suggested I stop relying on my mother to drive me to appointments. She calmly recommended I call a WHEELCHAIR VAN! It would pick me up and drop me off. She acted like I was some fragile invalid. The words barely left her mouth before I shut that shit down. I was not feeling it. The idea of being loaded and unloaded like cargo made my blood boil. The thought of sitting in a wheelchair instead of the seat of a car was infuriating. I told her no, thank you, and never went back. Now I get down onto the floor everyday and do my own exercises, No van needed. I refuse to give in. I refuse to let anyone reduce me to a scheduled pickup in a van built for surrender.

    Life keeps trying to force me onto my ass. There is even a goddamn chair sitting right there in my shower like a permanent joke . Most days I have no choice but to sit under the hot water like a broken doll while it cascades over me. But the only time I truly get to stand—proud, naked, water streaming down my body—is when my man steps in behind me, his strong hands gripping my hips as he holds me upright so I can clean myself. I love the way he steadies me, the way his hard body presses against mine, keeping me vertical through pure possessive strength while steam fills the air. In those heated moments I feel rebelliously alive, even as my legs scream and tremble beneath me.

    I face that humiliating chair and the endless war with gravity everyday. Yet, I reject every medical enhancement. I refuse every synthetic crutch and modern healthcare. I do not believe in any of it. If it is meant to be, it is meant to be. If sickness is coming for you, it will find you. It does not matter how many pills, injections, gene therapies, or experimental treatments they invent. All the advances in medicine are nothing more than dressed up as progress.

    I will not be synthetically made better.  
    I refuse to be rebuilt, patched, upgraded, or artificially propped up like some defective machine.  
    Only the natural way.  
    Only the forever way.

    And my hands? That is another story. For over fifteen years now, I have had the use of only my right hand. My left hand is dead weight, a silent traitor that sways useless at my side while I fight like hell. I have mastered one-handed shoe tying, buttoning, and zipping. I have learned to handle my personal hygiene with stubborn grace. However, some cooking (chopping, etc) and deep cleaning are still slow and frustrating for me. They are nowhere near as efficient as I demand of myself. I practice longer to get better physically. I refuse to accept the limitation. My ultimate goal is to do it all for my man. I want to cook his meals with these one-and-a-half hands. I want to deep clean our home until it shines, all for him. I want to serve HIM. I want to care for him. My broken body can still rise up and give him everything he deserves.

    This is my daily mantra. It is my middle finger to disability and to weakness. It defies a world obsessed with comfort and “fixing” every imperfection. I choose to feel every tremor, every ache, every exhausting victory on my own raw terms. I lean on counters instead of rolling in chairs. I am held up by my lover’s grip instead of cold metal and plastic. I struggle one-handed. I am eager for the day when I can entirely care for the man I love.

    In a society that worships ease and vulnerability, I stand as a living, breathing, unapologetic rebellion. My legs may shake and threaten to give out. My left hand may be useless dead weight. However, my spirit is lava. I will keep going every single day. I will keep whispering filthy sweet nothings into my man’s ear at night. I will keep fighting with everything I have left.

    This is how I love.  
    This is how I fight.  
    This is how I remain fiercely, provocatively, alive.

  • Americana.

    Americana.

    I have lived in the tiny town of Snohomish, Washington,since I was seven years old. Snohomish is not flashy. It is not Seattle. It is the kind of place where you grow up slow. The biggest drama is who forgot to lock the barn. In Snohomish, “good morning” still means something.

    I used to hate that. I wanted to be a big city girl (ala Samantha Jones in Sex and the City). I even went away from the public school I was supposed to attend. I did this so I could dress and be a little more high class. 

    The girls who live in Snohomish pride themselves for living in a Bodunk town. “Fancy” usually means that you will sink into the muddy fields. It is not the norm.  But I did not like that. I did not want to wear pajamas and slippers to class. I wanted to wear stilettos and I dreamt of living in a penthouse. 

     None of that ended up happening. It became dangerous to even visit a city. Now I have a different perspective of this small town. It feels like living inside a postcard and that postcard smells like rain and fresh-cut grass most days. 

    This town is tiny, maybe ten thousand people. Main Street still looks like it did in the nineteen-twenties. It has brick storefronts, a hardware store that sells everything from nails to fudge, and diners. The river runs right through the middle—Snohomish River, wide and slow. Packed with sunburned locals in July. Around here, summers are for the county fair (something that I do not partake in). It is not the flashy kind with Ferris wheels taller than trees. It’s just a dusty field off Second Street, filled with goats baaa-ing, cotton candy, and sketchy ride operators. Winters are quieter. Fog rolls in off of Puget Sound like a blanket, and school buses crawl through it, headlights glowing. 

    People here do not rush. You wave at strangers because you have seen them before— since the town is so small. Everyone knows everyone’s business. They do not judge, or at least, they do not judge out loud. This was new to this little Russian girl. I left for college, came back since. The river still smells the same. The hardware store still sells fudge. And yes it rains, but it rains softly— as if this place is giving you a hug. 

    I want to share this hug with the love of my life. Convincing my boyfriend to move out to Washington state was like my experience of recognizing my hometown in the past. It is different from the postcard version I see now. 

    While we would not be living in Snohomish, small towns are so much more attractive than the big bad cities. While I do not want to dress like a slob or float down a river in the summer— I would rather that than be raped by an immigrant and encounter needles in the storefronts.  He would rather cheer for the teams that his family has always supported and not be surrounded by “aw shucks” coworkers. 

    So I do not belong in Snohomish, Washington, but I have definitely developed an appreciation for small towns. I might live in a small “Americana” town in Montana or the Carolinas. Wherever I end up, I will always waive “hello” and will not judge (out loud). 

  • Coping with the Negativity.

    Coping with the Negativity.

    The first thirty minutes upon waking, program your brain for the rest of your day. I read that somewhere so it must be true. I always start my day with HIM. My boyfriend. Any dutiful woman should. 

    And because it is important that you find positivity in your life, I find it in him. My boyfriend makes the dark days brighter—even when he does not know it. There is this thing he does without trying: he turns my worst moods into something bearable. I mean— I am actually generally a positive person. I am a disabled thirty-six year old girl who still lives with her parents. I am thousands of miles away from the man I love. Given my status in this life, it would be understandable if I was genuinely down. 

    I receive plenty of criticism. People who love me, like my parents, criticize me. Also, the world at large thinks I am not living my life correctly. Everyone seems to have an opinion on how I should live my life. All I can really do is drown out all of this negativity around me. I choose to live for myself and my beautiful future ahead. 

    Right now we have to do it virtually through technology (is it really our fault that we met thousands of miles apart?) Because of the time difference (*eye roll*), he wakes me up at three every morning before he starts his day. We whisper sweet nothings to each other. He sends me videos of him making his espresso (real men drink espresso). He knows that makes me insanely happy and proud. Then I drift off to sleep until he gets to work. It’s about an hour—maybe two if I sleep in. Because that is what a committed person does— supports the person they love. 

     I do not require grand gestures or therapy-speak from him —just his being there for me. And honestly? It is weird how much that matters. I often feel alone— criticized, ignored— like no one cares about what I think or say. He does not argue. He does not fix. But goddammit— he listens. 

    At times, I do not even want to smile. But, because of him, I usually do. And suddenly the room feels less heavy. It is not that he erases the bad stuff. Life still happens—that gnawing anxiety I cannot shake. But he is like… a filter. Everything gets softer around him. 

    How he tells me to scream and cry because he gets it. I need that release. I am so tired of keeping everything in. How he entertains my passions. I go on rants about a topic that I love, and he just lets me talk. And how excited he gets for me when I achieve a personal success. 

    I know that sounds stupid. But to me it is pretty perfect. People talk about love like it is fireworks. They criticize us for not obeying their rules. But our love feels more like a lamp in a storm—quiet, steady, just enough light to see the next step. He does not solve my problems (not yet at least!). He just reminds me they are not the whole story.

    Sometimes, I worry I lean too hard on him, like I am borrowing his calm because mine ran out. He does not realize he is the reason I breathe easier. That I smile every time I wake up (even if it is at three in the morning). So here is the truth: he doesn’t fix my negative life. He just makes it feel smaller. And for now, that is enough.

  • Physically.

    Physically.

    I am still buzzing from last week —just lying there, tangled up in sheets, his arm slung over me. 

    I swear, nothing feels better than finally being in the same room as him. No more FaceTime lag, no more “can you hear me?”—just his stupid grin, his real voice, the way he smells like his high end cologne collection. I melt every time he opens his arms towards me . Like, actually melt. My shoulders drop, my jaw unclenches, and suddenly the whole past —my parents criticisms, constantly feeling ignored and not understood —evaporates. 

    He does not even have to say anything. Just stands there, arms open . We did not do grand gestures. No roses, no playlists. Only sweet treats waiting for me upon arrival. Then him flopping onto the hotel bed, me curling into his side like it is the only spot that fits. His hand finds mine—always does—like it’s muscle memory. And I think, “God, this is it”. This is what I have been waiting for.

    The best part? He gets quiet too. Like he knows I need five minutes of nothing—just us breathing, the TV on mute, his thumb rubbing slow circles on my knee. I could stay like that forever. I do not care if it sounds sappy. I am happy. Not content or fine—happy. The kind that makes my chest ache a little, like it is too big for my ribs. And yeah, I miss him. But right now? I guess I just wait. 

    The waiting is terrible but necessary and I hope —temporary. When the bleed took my body away from me, I was waiting to go back to university (I thought I would physically be back on campus), but instead, my parents made me apply online and finally finish my Bachelor’s degree TEN YEARS LATER. Then came the waiting for my recovery—I realized that I wasn’t made for the indoctrination and fake “wokeness” of the “real world.”

    But when I met my man I thought that this waiting was over. He loves me as I am—so I no longer needed to rush anything or force myself into school/ work. 

    I found that in these settings, I was constantly being penalized for having the “wrong “ opinions in my essays and papers, but would immediately be rewarded and praised as soon as I brought up my disability. I did not want to use my situation as a crutch. I hate pity.  So I chose to be myself. A little right wing, conservative and definitely against any kind of diversity. And everyone hated that. Except the love of my life. 

    But when I am back home alone again—in my own little bubble—the quiet hits different—like the rooms are too big without him breathing next to me. I miss the way he rolls over and pulls me closer—I keep replaying it: his fingers tracing lazy circles on my back, the way he mumbles to me even though I’m already half-asleep. It’s stupid how much I crave that—his weight, his heat, the dumb little sounds he makes when he is dreaming. And yeah, I know it is cheesy to say out loud, but… I am happy.

     Like, stupid-happy. Not the Instagram-filter kind—just the real, messy, I-cannot-believe-this is-mine kind. I never had this before. Was I ever truly happy?  I manipulated my way into graduating with straight As and everything else I had done was always done through force or for someone else. This is mine. My life. My happiness. So here’s to him. To us. To every second I get to be physically right there, skin on skin, no screens, no distance—just him and me and this ridiculous, perfect quiet… I guess I have to go back to waiting for this feeling again.