Kat’s Musings

Tag: disability

  • The Faux Pas of Following the Script in Life

    The Faux Pas of Following the Script in Life

    Faux pas.

    Literally, it means “false step” in French—like you tripped over your own feet in the middle of a crowded ballroom and everyone turned to stare. In American English, we have borrowed the term to describe any social blunder, any tiny (or not-so-tiny) violation of the invisible rulebook that supposedly keeps society running smoothly. Say the wrong thing at a dinner party. Wear white after Labor Day. Ask a woman when she is expecting … when she is not actually pregnant. Boom. Faux pas. Social death.

    The phrase has always fascinated me because it is so perfectly French in its elegance and so perfectly American in its judgment. It sounds sophisticated, almost romantic—but really it is just polite code for “you messed up and now everyone’s secretly judging you.”

    And that got me thinking.

    Why are we so obsessed with these invisible lines? Who drew them? Who keeps redrawing them every few years? And why does the mere idea of being told how I am“supposed” to behave in any given situation make my skin crawl and my inner rebel kick into overdrive?

    I have never been good at following scripts. Not in recitals, not in job interviews, and definitely not in the grand theater of adult life. The older I get, the more I realize that a huge chunk of my personal growth has come from deliberately stepping on the lines everyone else is so busy tiptoeing around. Not out of spite (okay, sometimes out of spite), but because performing for an invisible audience feels like slow suffocation.

    Let me give you an example. My lack of job or career. My relationship and its status.

    Translation: Sweetie, that’s a faux pas. You’re supposed to say you are a “marketing coordinator” or “nurse practitioner” or anything that sounds like you have a 401(k) and a five-year plan.

    And: He is suppossed to choose you immediately. You should live together, get married and become a family, like everyone else…

    Because apparently everyone is the same and has the same path in life.

    Stability is overrated when you are busy living the life you actually want. And I want to be his 100%.

    That moment I am told how to live my life is never about being rude. It is all about refusing to shrink myself into the neat little box labeled “Acceptable Adult Woman.” Society has a whole collection of those boxes—career boxes, relationship boxes, body boxes, personality boxes—and they all come with instruction manuals disguised as “just common sense” or “what everyone does.”  News flash: most people do not even have any sense whatsoever (so it is not really that common). 

    Here is the thing I have learned the hard way: those expectations are not there to protect us. They are there to keep things comfortable. Comfortable for everyone else. Predictable. Easy to categorize. If I follow the script—get the degree, land the safe job, marry at the right age, have the right number of kids, post the curated vacation photos, never admit I sometimes cry in my shower—then nobody has to feel awkward. Nobody has to question their own choices. The machine keeps humming.

    But what if the machine is boring? What if the script was written by people who were terrified of their own shadow? What if “fitting in” is just another way of saying “quietly dying inside”?

    I am not advocating for chaos. I still say please and thank you. Basic decency is not the enemy. The enemy is the quiet tyranny of “this is how it’s done” when “it” no longer fits who you actually are.

    I hate being told what to do because I spent too many years doing exactly that and waking up wondering whose life I was living. I hate performative expectations because they turn human connection into a performance review. And I especially hate the way media has turned every single faux pas into a public execution. One off-color political joke, one long distance relationship, one honest opinion and suddenly you are struggling to get followers on social networks.

    The irony is that the people quickest to call out faux pas are often the ones most trapped by them. They are not free; they are just better at pretending.

    So here is my quiet rebellion: I am going to keep committing the occasional faux pas. Not the cruel ones—never those—but the ones that come from refusing to edit myself for other people’s comfort. I am going to wear the “wrong” outfit, say the “wrong” thing at the “wrong” time, and build a life that looks messy and inconsistent and deeply, unapologetically mine.

    Because the real false step is not tripping over some arbitrary social rule.

    The real false step is spending your whole life walking someone else’s path so carefully that you forget how to walk your own.

    And relearning how to walk has taught me that:  I would rather stumble forward in my own Yeezys than glide perfectly in someone else’s shoes. 

  • Walking Ten Feet at a Time: My Daily Dance with Recovery

    Walking Ten Feet at a Time: My Daily Dance with Recovery

    Every single afternoon, after the nap my body demands like a stubborn toddler, I film myself walking. It is only about ten feet. To most people, that probably looks like nothing at all. But to me, those ten feet are everything. A step closer. They are proof that I am still moving forward—literally—one brave, wobbly step at a time. It feels incredible.

    My days start brutally early. I am up at 4 a.m., already chasing the version of myself I desire. By the time lunch is over, my body is spent from the morning’s workout and the constant grind of rehabilitation. My eyes grow heavy, my muscles scream for mercy, and I surrender to the bed like a little baby who earned her nap time. I used to fight it, but I learned to listen. The nap is not weakness; it is fuel. When I wake up an hour or two later, something magical happens. Energy surges back. Determination reignites. And suddenly I am excited—actually excited—to challenge myself again.

    That is when I head to the back deck.

    I strap on my brace even though I hate it. Most days I go without, stubborn as hell, refusing any device that reminds me I am not “normal” yet. But when I am about to push my limits, safety first applies (*eye roll*). The deck has a sturdy railing on one side—my own private parallel bar. I used to grip it at first, today I just walk along it slowly, no longer feeling the wood warm under my palm. At the end of the railing, I just stand there, working on my balance. Feet planted, core engaged, eyes focused on a spot in the distance (the heating lamp usually). The world narrows to that single task: don’t fall.

    I film every attempt. Sometimes it is a clean walk. Sometimes it is shaky. First, my left (weak) leg pushes forward. That is the easy one. I do not need balance or strength help on this side, but then I have to shift onto this weak side and move my right leg forward. Sometimes the left side refuses to hold me up. Sometimes I end up on the ground. I have fallen more times than I can count out there—head cracking against the deck, shoulder slamming into the wall. Each bruise is a story. Each tumble is data.

    I send the videos to my boyfriend anyway. I do not even know if he is watching them but the simple act of having an audience changes everything. It turns a lonely struggle into a performance. It makes me bolder. I love showing off for him. There is something powerful about letting the person you love witness your rawest, most determined moments.

    I remember the early days when I had to clutch that railing for dear life, knuckles white, heart pounding. Letting go felt terrifying—like stepping off a cliff (hence why I wear my brace out there— in case my weak side refuses to hold me upright). But I did it anyway. Because I want this more than I fear the falls. I want to walk across a room without thinking. I want to stroll through a park holding his hand instead of a cane or brace. I want zero differentiation between me and everyone else. No explanations. No pitying glances. Just me, moving through the world the way I used to—freely, confidently, joyfully.

    This recovery is not linear. Some days the ten feet feel like a marathon. Other days I surprise myself and push for more. The falls rarely happen anymore , but they sting a little less because I know they are temporary. Every time I stand back up, dust myself off, and hit record again, I am rewriting my story.

    Small steps matter. Naps are not laziness; they are strategy. Now I see that my stubborn refusal to stay down is beautiful. I keep filming. Keep showing off. Keep chasing the version othat refuses to be defined by limitations.

    I am not there yet. But every afternoon, after my nap, I get a little closer. Ten feet at a time.

    And it feels amazing.


    I am already dreaming bigger—longer distances, no railing, maybe even a real walk around the block. I will keep sharing the journey here, bruises and all.

  • Making A Snack is a Small Win: Why I Would Rather Tremble Than Sit

    Making A Snack is a Small Win: Why I Would Rather Tremble Than Sit

    Every single day that I drag my ass through a physical therapy workout—and weekends too—I earn this one stupid, glorious ritual. It is not some Instagram-perfect thing (although I definitely try to make it as such). It is me, alone in my kitchen in the afternoon, slicing up a crisp apple/pear, then drowning it in thick, creamy mixed nut butter (Nuttzo). Spoonfuls. Fingerfuls. Straight-from-the-jar licks that leave my tongue sticky and my soul satisfied in a way no proper dinner ever could (my boyfriend loves when I go through an entire jar in one week/ask him to buy me more).

    But there is a catch—the part nobody sees, the part that turns this “reward” into a full-contact sport: I have to stand up and get the damn bowl first.

    I used to play it safe. I took dishes from the dishwasher only. Staying planted in my chair like a queen on her throne, never risking the wobble. Grab what I need without ever testing gravity. Easy. Predictable. Cowardly as hell. My body had already betrayed me enough; why invite more drama? I would tell myself it was smart. Strategic. But it was fear wearing a productivity mask.

    Not anymore.

    I crave the hard way. I need it. Standing on my own two feet—literally—feels like flipping off every limitation my recovery tried to slap on me. Because recovery is not a straight line or a cute little progress chart. Sometimes it is me making things way more complicated than it has to be, just to prove I still can. Just to remind the universe (and my own nervous system) that I am not done fighting.

    So here is how the ritual goes down:

    I wheel my chair up to the cabinet, perfectly parallel. Doors flung open—top two, still seated, no heroics yet. My fingers slide onto the top shelf while my thumb hooks through the bottom doors, creating this weird, improvised harness. The shelf becomes my lifeline. My crutch. My middle finger to the dizziness that still tries to own me.

    Then the real starts.

    I push up. Slow. Deliberate. Left foot always betrays me first—lifts clean off the floor because my brain, traitorous as it is, only trusts the right side. It is like my body has a built-in bias: “Right side strong, left side… eh, we’ll see.” Unless I consciously force it, I shift hard left, hips tilting, core screaming. I hover there for a second, half-standing, half-praying, every muscle in my legs and back locked in a death grip.

    Vertical. Finally.

    But I am still white-knuckling the shelf. Not free. Not yet.

    Now comes the money shot: I have to let go.

    My right hand releases. Then reaches deep into the cabinet for those elongated bowls—the big ones that actually hold a proper snack mountain instead of some sad little molehill. My legs start quivering.  I clench everything—glutes, quads, abs, even my goddamn jaw—just to stay upright. My left arm bends up toward my chest like it is trying to hug itself for comfort, sometimes flailing wild like a drunk. One wrong twitch and I am knocking over glasses, plates, the whole fragile ecosystem of my kitchen. Heart pounding. 

    For those three terrifying seconds, I am completely on my own. No shelf. No chair. No safety net. Just me, my shaky legs, and the stubborn refusal to sit back down like the old version of me would have.

    And then—boom—I snag the bowl.

    I drop back into the chair like I just summited Everest, grinning like an idiot, breathing hard, maybe even laughing at how ridiculous it all is. Because it is ridiculous. A grown woman turning a cabinet reach into a high-stakes balance beam routine just to eat fruit and nut butter. But that is the point. That quiver? That tremble is the sound of my body remembering it is still mine. That is recovery screaming, “Look at me, fucker—I stood.”

    The snack tastes better after that. Sweeter. Crunchier. The nut butter hits different when you earned it through actual effort instead of autopilot. I slice the apple, with one hand (and the edges of my counter for stabilizing said apple), into perfect wedges splayed around the edges of the bowl, dollop the butter, then lick the spoon clean and go back for finger scoops straight from the jar because rules are for people who did not just fight gravity and win.

    The snack!

    Every time I do this, I am rewriting the script. The old script said: Protect yourself. Stay small. Don’t risk falling. The new one says: Make it hard. Make it count. Stand anyway.

    Recovery is not always the big, flashy milestones—walking without aids, running a 5K, whatever the highlight reel sells you. Sometimes it is this. A bowl. A snack. A deliberate choice to do the scary thing because the easy way out stopped feeling like living.

    So yeah, I tremble. I wobble. I clench every muscle like my life depends on it (and some days, it kinda feels like it does). But I stand. I reach. I get the fucking bowl.

    And then I sit down and enjoy the hell out of my reward.  Some days I get it all over my clothes as I scoop straight from my lap in a sad attempt of stabilizing the jar and some days it takes me almost an entire hour– simply because I am eating my nut butter whilst parked in the kitchen.

    Ultimately I do not take the shortcut.

    I took the fight.

    And damn, it feels good.

  • From Sugar Baby to Trad. Wife:

    From Sugar Baby to Trad. Wife:

    I will say it out loud, no shame: I used to want to be a full-on Sugar Baby. Not the cheap fantasy version you see online, but the real thing—pampered, polished, and possessed by a man who could afford to keep me dripping in luxury and attention. I was never on Seeking Arrangements or any of those sites, but when I got really sick, that dream became my secret lifeline. While my body was failing me, my mind was busy painting a future where I was not disabled anymore. I imagined myself as this feminine goddess: luscious long hair cascading down my back, completely hairless and smooth everywhere that mattered, skinny, full makeup—the whole package. The kind of girl men could not look away from.

    I joined a private Facebook group full of girls who knew exactly how to weaponize their femininity. They taught me how to dress, how to move, how to speak, how to flirt with power and money. Every post, every tip, every “how to make him obsessed” thread lit a fire under me. It gave me something to fight for on the worst days. While I was stuck in a wheelchair, I was mentally rehearsing the version of me that would turn heads and drain wallets. I wanted to be noticed. I wanted to be admired. Craved. Spoiled. Chosen. Deep down, I did not feel worthy of any of it yet—but that fantasy made me believe I could be.

    And then… it actually happened.

    When we first connected on Twitter (yes, Twitter, before Elon Musk saved us with X) the sugar baby lifestyle was all that I hoped for and I absolutely was not looking for anything real. Commitment? Hard pass. Feelings? Too risky. But attention and shiny new toys? Those I could handle. So that was what I settled for. I strung him along, playing it cool, dropping hints about what I wanted without ever sounding desperate. He read between the lines perfectly.

    He knew the game from the jump. I gave him a PO Box instead of my real address at first—safety first,—and every single week, like clockwork, a new package would show up. AirPods? Delivered with a cheeky video of him on the Apple website ordering them while I was lounging in Cabo, both of us convinced our flirty Twitter phase was fizzling out. A Pretty Woman DVD (yes, an actual physical DVD, the man has taste and nostalgia). Barstool Sports gear for days because we bonded hard over the unfiltered sports talk that made us both laugh like idiots. He spoiled me rotten, and I let him. No guilt. No apologies.

    Every girl should experience sugar baby vibes at least once. There is something powerfully feminine about being pursued, pampered, and provided for while you keep your little heart in a little locked box. The hundred-dollar Venmos, the surprise drops, the thrill of knowing he is thinking about you every time he swipes his card—it is intoxicating. It is not just about the stuff. It is the power dynamic. The way it makes you feel desired, expensive, worth the chase.

    But then it got real. 

    The constant contact—the good-morning texts, the voice notes that made me smirk in public, the weekends that turned into three hour-long FaceTime coffee dates—started cracking my walls. What began as “he buys me things, I give him attention” slowly became I can’t quit him. The sugar daddy arrangement was the gateway drug, but the real addiction was him. His humor. His voice. The way he matched my chaotic energy and then some.

    Now? He still pays my bills. No more random Venmos, but the support is deeper, steadier, sexier in its reliability. He is not just a sugar daddy anymore—he is my man. My love. My favorite person on the planet.

    Yet those Baby and Daddy vibes? They never left. They evolved into something deliciously playful and immature that keeps the spark filthy and fun.

    We act like absolute children together. The kind of childish that involves wrestling over the remote (when we are physically together), ridiculous nicknames, and the kind of uncontrollable laughter that turns into happy tears and breathless squeals. I have never laughed as hard in my life as I do with him. The squeals he pulls out of me—they are embarrassing and addictive. When we first started talking, I used to slap my hand over my mouth— hiding my crooked smile from his view. We are talking full-on belly laughs that leave my abs sore and my face hurting. Pure, unfiltered joy. The man makes me happy in a way I did not know was possible. The kind of happy that makes you glow, that makes everyone side-eye you like, “Who the hell are you right now?”

    There is something profoundly hot about a relationship that can go from “Daddy’s spoiling his baby” to deep, soul-quenching love without losing the playfulness. The power exchange is still there. He provides, I tease. He leads, I challenge. He has me feeling both safe and completely unraveled.  A feeling I never expected. I thought that I would be the other woman. Or a sugar baby. Not the main event. 

    So if a man is willing to show up for you like that—financially, emotionally, playfully—do not be afraid to lean in. Sugar baby energy is not about being shallow; it is about knowing your worth and letting someone prove they can match it. And when the gifts turn into genuine love, when the “arrangement” becomes “forever,” it hits different. Deeper. Wetter. Louder.

    I went from stringing him along with a PO Box to being completely, stupidly in love with the man who still makes me feel like the most spoiled and cherished woman alive—went from a sick girl who did not feel worthy of being looked at to the woman who gets spoiled, and loved so intensely/passionately it leaves me ruined for anyone else.

    And those squeals? They are just getting started.

  • Stop Romanticizing the Past: Embrace Today

    Stop Romanticizing the Past: Embrace Today

    We have all heard it. We have all said it. “Man, things were better back then.” People are always yearning for the good old days—start appreciating everything today:

    Nostalgia is not a memory—it is a seductive liar.

    It edits out the bad.

    The ugly.

    We airbrush the boredom, the limited choices, the untreated depression, the rotten teeth (yay for healthcare!) and the way information trickled so slowly that ignorance felt like wisdom. I kind of do wish we ladies were still dumb, though… I rely more on my man to know what is going on in the world so that I can just be delulu about things.

    And while we are busy pining for that heavily filtered past, the actual miracles are all around us right now. We are living in the most abundant, connected, opportunistic era in human history, and most of us are too busy doom-scrolling and whining to notice.

    Technology seems to be sprinting. AI that writes better essays than most college students. Instant access to the entire library of human knowledge in your pocket. You can video call your grandmother on another continent while ordering takeout that arrives piping hot. And still, people scroll past miracles to complain that their coffee order took four minutes instead of three.

    This change terrifies people. It always has. That is why every generation thinks the next one is doomed. But here is my hot take: your nostalgia is a coping mechanism for your fear of the unknown. It is easier to idealize 1997 than confront 2026. People are afraid. What is going to happen tomorrow or next month?

    It seems easier to romanticize rotary phones than master and learn the new tools.

    Stop yearning. Start appreciating—aggressively.

    The secret is not in the past. It is in the lens. Shift it—or stay miserable.

    Look at your smartphone not as a distraction device but as a doorway for wonder. With it, you can learn a language in weeks, watch a live surgery in Tokyo, or hear the voice of someone who died decades ago (I know… Creepy.) We treat these luxuries like it is normal. It is not. It is insane.

    We find food in our grocery stores from every corner of the world. Planes and automobiles have actually united us. We consume other cultures and cuisines. This is the true meaning of America.

    Surgery and modern medicine (despite its faults) make it absolutely insane to continue complaining about the small aches and pains. Some of us do not even walk; are you really going to cry about a hangnail?

    The internet has also demolished geographic and social barriers. You can meet your person- someone who actually matches your weird frequency- instead of settling for the least awful option within a 10-mile radius. I personally would despise settling down with someone from around here. The old days had arranged marriages and shotgun weddings. We now have sad dating apps and yes, we rate each other based on our looks. So yes, trade-offs exist, but pretending the past was pure romance is historical fan-fiction.

    In a culture addicted to outrage and comparison, choosing to appreciate the present is rebellious. It is punk rock. It flips off the algorithm that profits from dissatisfaction. People really do love to complain, criticize, and comment.

    Essentially, the world is blossoming with possibility while you are staring at old yearbooks. One thing that has always bothered me is that most of our bodies are a biological marvel capable of running, dancing, orgasming, and healing—and yet people are mad about theirs not looking like a filtered influencer. It is called do something about it—if a disabled girl can lose more than one hundred pounds, you can do anything. The body is truly a marvel.

    The mind is too.
    Your mind can comprehend quantum physics (or silly girly things—like writing a blog!) and write love poems, yet you use it to relive 2008 politics.

    The good old days are a trap. They keep you small, bitter, and blind to the abundance screaming for your attention. Every moment you spend mourning a myth is a moment stolen from building something better.

    The world is changing so fast that if you blink too long in nostalgia, you will miss the best parts of being alive right here, right now. The coffee is hot. The internet works—until the power goes out, because living in the woods is great. Your heart is beating. The future is wide open.

    Appreciate it all—fiercely, obnoxiously, unapologetically.

    Or keep complaining. The past will not care, and the present will keep delivering miracles whether you notice them or not.

    The choice is yours. But only one of them feels like living.

  • Defying Disability: My Daily Act of Rebellion

    Defying Disability: My Daily Act of Rebellion

    Every single morning, I whisper sleepy sweet nothings to my man. After that, I rise with fire in my veins. I spend the entire day fighting against the disability that constantly tries to drag me down.

    I push this stubborn, trembling body to its absolute breaking point. I lean hard against the bathroom counter while brushing my teeth. My legs shake as I take selfies for him in the mirror. I refuse to let weakness win. In the kitchen, I grip the edge of the counter. I make my espresso with gritted teeth. My knees threaten to snap back beneath me. I refuse to constantly sit in a wheelchair. I refuse to strap on those ugly, soul-crushing leg braces that would mark me as conquered.(Only HE is allowed to do that!).

    A physical therapist once looked me dead in the eye. She suggested I stop relying on my mother to drive me to appointments. She calmly recommended I call a WHEELCHAIR VAN! It would pick me up and drop me off. She acted like I was some fragile invalid. The words barely left her mouth before I shut that shit down. I was not feeling it. The idea of being loaded and unloaded like cargo made my blood boil. The thought of sitting in a wheelchair instead of the seat of a car was infuriating. I told her no, thank you, and never went back. Now I get down onto the floor everyday and do my own exercises, No van needed. I refuse to give in. I refuse to let anyone reduce me to a scheduled pickup in a van built for surrender.

    Life keeps trying to force me onto my ass. There is even a goddamn chair sitting right there in my shower like a permanent joke . Most days I have no choice but to sit under the hot water like a broken doll while it cascades over me. But the only time I truly get to stand—proud, naked, water streaming down my body—is when my man steps in behind me, his strong hands gripping my hips as he holds me upright so I can clean myself. I love the way he steadies me, the way his hard body presses against mine, keeping me vertical through pure possessive strength while steam fills the air. In those heated moments I feel rebelliously alive, even as my legs scream and tremble beneath me.

    I face that humiliating chair and the endless war with gravity everyday. Yet, I reject every medical enhancement. I refuse every synthetic crutch and modern healthcare. I do not believe in any of it. If it is meant to be, it is meant to be. If sickness is coming for you, it will find you. It does not matter how many pills, injections, gene therapies, or experimental treatments they invent. All the advances in medicine are nothing more than dressed up as progress.

    I will not be synthetically made better.  
    I refuse to be rebuilt, patched, upgraded, or artificially propped up like some defective machine.  
    Only the natural way.  
    Only the forever way.

    And my hands? That is another story. For over fifteen years now, I have had the use of only my right hand. My left hand is dead weight, a silent traitor that sways useless at my side while I fight like hell. I have mastered one-handed shoe tying, buttoning, and zipping. I have learned to handle my personal hygiene with stubborn grace. However, some cooking (chopping, etc) and deep cleaning are still slow and frustrating for me. They are nowhere near as efficient as I demand of myself. I practice longer to get better physically. I refuse to accept the limitation. My ultimate goal is to do it all for my man. I want to cook his meals with these one-and-a-half hands. I want to deep clean our home until it shines, all for him. I want to serve HIM. I want to care for him. My broken body can still rise up and give him everything he deserves.

    This is my daily mantra. It is my middle finger to disability and to weakness. It defies a world obsessed with comfort and “fixing” every imperfection. I choose to feel every tremor, every ache, every exhausting victory on my own raw terms. I lean on counters instead of rolling in chairs. I am held up by my lover’s grip instead of cold metal and plastic. I struggle one-handed. I am eager for the day when I can entirely care for the man I love.

    In a society that worships ease and vulnerability, I stand as a living, breathing, unapologetic rebellion. My legs may shake and threaten to give out. My left hand may be useless dead weight. However, my spirit is lava. I will keep going every single day. I will keep whispering filthy sweet nothings into my man’s ear at night. I will keep fighting with everything I have left.

    This is how I love.  
    This is how I fight.  
    This is how I remain fiercely, provocatively, alive.